Wondering

Sudden or Slow?

“Don’t you think it’s much harder to have someone die suddenly than to have them die slowly?”

Multiple myeloma (1) MG stain

Multiple myeloma. Don’t let the pretty color fool you, this is wicked stuff.

A room full of ten women recently heard that question. The one asking is dying slowly. It’s a process that’s being going on for the past four and half years. The one she was asking lost her husband unexpectedly to death six months ago. Neither of these women qualify as old, not by any stretch of the imagination. They are young and at the peak of life’s gifts and joys and grinds.

What a stunning question to ask someone straight out when they’ve suffered such a horrendous loss.

It caught my breath. But they’ve both earned the right at such honesty about  a difficult subject.

But there’s no topic off-limits in that group. Not anymore. Ten years ago, maybe. Now. No.

A short list of some the other losses for that group of friends:

  • Two have cared for a dying or dementia ridden parent who then died.
  • A mother died from cancer.
  • A mother died after a long, long life.
  • A best friend dying suddenly in an accident.
  • A husband suffered a massive coronary, lived, but has lost earning capacity, mental acuity and vitality.
  • A sister with brain cancer.
  • Parents died at the hands of a drunk driver when she was eleven.

The Answer to that question is…

The conclusion was that sudden death was harder to deal with. No warning. No chances to say goodbye, to say last important words.

Although, the slow dying thing isn’t exactly fun for anyone involved either.

My friends talked about extra weeks purchased at the cost of hail-Mary chemo treatments. Talk of hospice and bereavement counseling also bantered about the room.

Honestly, I felt myself trying to physically create an emotional wall in that room. I kept turning my head away from this wrenching discussion, visualizing a barrier, willing my hearing to deafen instantly. Even now, writing about it, I’m leaning away from that side of the room, trying to create distance from such personal stabs of knife twisting pain.

I can’t, I won’t, I don’t want to deal with it.

There’s no escaping though.

We’re all dying slowly.

But that’s not the point is it?

The point is living in the meantime.

Velcade Chemo treatment: Cycle 2, Week 2

Velcade Chemo treatment (Photo credit: tyfn)

That isn’t always easy. Filled to the brim with mean poisons, your body overrun with side-effects, doped up on painkillers to survive the treatment that’s supposed to buy you more time, how do you make use of such poor quality time? How do you smile when the pain is excruciating? How does someone do anything useful, check any tiny thing off their bucket list, interact with their loved ones in a meaningful way under such circumstances? Cancer and its treatment is a personal tornado that rips lives to shreds.

Or maybe your challenges are slightly less complicated than that. Maybe you have chronic pain or a life altering illness. Perhaps you’re unemployed. Maybe you’re always worried about finances. Perhaps you work in a horrid place. Maybe your spouse makes life unbearable. Your parent might need additional care. Your child could have learning difficulties. Your car is unreliable. Loneliness haunts you. Your past feels inescapable.

Or maybe, if you’re lucky, it’s just garden-variety stuff. Busy schedules, sore muscles, what to fix for dinner for the zillionth time, a curfew-breaking teen, piles of bills needing attention, the mountain of laundry requiring scaling, a leaking roof, a tooth ache, weeds.

Living in the moment while living in the reality we find ourselves in. Not always easy. Rarely easy, actually.

Have we created a now that includes eternity or is now all there is? What’s your perspective? Immediate, long-term, short-term? Or maybe with blinders on? That’s a tempting option, but not a great one. How do you get through? What’s your coping strategy?

Death is coming for us all, eventually. Sooner or later. That’s the only way out.

What are we doing in the meantime?

Categories: Death, Mental Health, Wondering | Tags: , , , , , , , , , | 2 Comments

Before I Kick the Bucket

Bucket List, Schmucket List.

I’m probably one of three people on the planet who doesn’t have a bucket list.

So shoot me.

I’ve tried to make a list. I’ve started one. There’s one thing on it. I look at it and smirk. The smirk morphs into a self-deprecating laugh, which then mutates into a sinister shoulder devil.

The shoulder devil proceeds to tell me what a loser I am. The little dude whispers that I am what my life hands me. He murmurs things about obligations, commitments, real life and being self-less. I know, not your usual shoulder devil by any stretch. This one comes from the ranks of the Discouragement Platoon. He uses whatever he can get his hot little hands on.

He’s been quite effective so far in keeping me from even considering possibilities. Everything I can think of sounds unrealistic, undoable, pie-in-the-sky silly to me.

I don’t even start the list, I think of it in terms of questions and this shoulder devil smacks them down.

  • Write a novel? Right…that’s funny. When would you have time for that and who would read it anyway?
  • Hike the Grand Canyon? Are you kidding me? You’re seriously considering hauling this body down and back out of the biggest hole on the planet? Don’t you get out of breath going up a couple of flights of stairs?
  • Explore Alaska? Sure, right after you scrape together the rent money and sweep up what’s left over.
  • Build a cabin in the mountains? Silly girl, perks like that are for the beautiful, smart, adventurous people.
  • Eat at a five-star restaurant? Um, aren’t you the meatloaf and pot roast queen?
  • See the Statue of Liberty in person? Remember you don’t like crowds, big cities, the east coast?
  • Go on a week-long mountain bike trip? That’s really funny, have you seen what you look like on a bike? 

Sand bucket on the beach of Punta del Este, Ur...

Okay. So maybe I shouldn’t aim so high. Maybe my bucket list could take on a more realistic, more achievable, more down-to-earth feel.

For instance?

Like, oh, I don’t know.

A bucket list by definition is usually big important stuff, right?

So I’m stumped.

I could try looking at it a different way. What if I had less than a year to live? Then what would be on my list. My shoulder devil growls a low deep gurgle of aggravation and simmers himself into a poof of steam, disappearing for a while.

Phew.

  • See my other two daughters get married. Enjoy that look of bliss on their faces. Throw a big party for each of them.
  • See my granddaughter whose arrival is due in 3 months.
  • Tell my kids that I love them more than life itself.
  • Spend time with the other two Grands. Lights in my life!
  • Make sure MSH knows I cherish him. Thank him for the wild ride we’ve been on together. It would have been horrific without him.
  • Hug my Mom and Dad and try to infuse eternal gratitude into the hug.
  • Hang out with my siblings, chatting, laughing, reliving the good old days.
  • Apologize. Mend fences.
  • Write down everything I can get out of my head and on to paper about who I was, who I am, what I learned.
  • Laugh a bunch.

That would do it. It’s what’s really the big stuff. The big stuff that matters in the long run, in the short run, and while running out of breath.

Maybe I should get started.

That other stuff, may or may not happen. Whatever.

But the big, important stuff, I need to get ‘er done.

Categories: Death, Family, Humor, Relationships, Wondering | Tags: , , , , , , , , | 4 Comments

Forgetting, Remembering, Wondering

PortalPhilosophers

Some really smart thinkers.

Have you ever wondered why we can’t remember something incredibly important, like a close relative’s name when you need to introduce them to someone, but yet you can never forget some of the most hideous, stupid, inane, mind-squinching things?

The question circles around in my head constantly the past few days.

Why, why, why can’t I annihilate gross images, scary things, disgusting stuff from my memory banks?

Why, why, why can’t I remember wonderful people, details from a red-letter day, words that hover at the edge of my brain?

Is it the shock of a particular thought or word or image that embeds it more permanently? Does the vile and vulgar register on gray matter in a more potent formula of chemical reactions? Are happy, joyfilled, pleasant thoughts less powerful, less meaningful, less memorable for a reason?

The brain, the mind, and consciousness fascinate me.

I read a book once called Sophie’s World, which in story form explained many philosophies. It seems like it might have addressed this very question. But of course, now that I want to recall those details, I can’t.

Seems it covered Marx, Socrates, Kierkegaard, Kant, Democritus, Darwin, Plato, St. Augustine, Hume, Spinoza, Floyd, Descartes, Locke, Berkeley and a few others. It’s been at least fifteen years since I read it, so it’s miraculous I remember any of this.

I’ll have to scare up a copy of the book. I loaned my out and never got it back. When I’ve gotten through it and found an answer or two, I’ll get back to you.

Did, or will this book help me with my question? I have no idea. But it has come to mind as I’ve thought about the remembering and forgetting issue. So I’m kind of going with it. Seems like it might have opened my eyes to new ways of thinking about and viewing the world and life in general.  Somehow it feels like it might help me understand my remembering and forgetting. Who knows. Like I said, I’ll find a copy and dig in and see what I find.

head anatomy lateral view superficial details

head anatomy lateral view superficial details (Photo credit: Wikipedia)

Most likely I need an anatomy book, or a neuroscience book. That’d probably be more helpful, but I’m less likely to understand what I’m reading.

In the meantime, I’ll keep wondering.

And remembering. Ack!

And forgetting. Eesh!

Categories: Books, Wondering | Tags: , , , , , , | 4 Comments

Words Find Us

Been doing a brief bit of traveling this past week. So naturally my camera snapped some moments. Or at least it tried to.

Photos don’t grab the nuance in the breeze as you eat on a balcony with Pike’s Peak behind you. Photos can’t record the pride a parent feels. Photos miss the exchange of love and light in a look between two people.

Strangely, the word photos I took seemed to speak volumes about all the good stuff going on.

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Categories: Love, The World, Wondering | Tags: , , , | Leave a comment

Had You Known

Once in a great while I run across something that just floors me. This quote is one of those. You might want sit down before you read it.

Some luck lies in not getting what you thought you wanted but getting what you have, which once you have got it you may be smart enough to see is what you would have wanted had you known. 

~Garrison Keillor




Bench

Sure, take a seat. Think that one over.

Yup, you’ll need to read it again, slower the second time.

And maybe one more time.

Such an opposite thought to our frantic to-do list, achievement oriented lifestyle, it’s not your standard “reach for your dreams” kind of sentiment, is it? No, it’s the complete opposite of most “motivational” quotes.

Here’s an idea which is very nearly blasphemous in its quiet advocacy for contentment, fulfillment, serenity, satisfaction, happiness, gratitude, pleasure, gladness, or ease.

I like it.

Let it sift through your thoughts to see if maybe it’s an idea you need.

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Putting on a Game Face, Going Through the Motions

Have you ever had a preconceived notion blasted out of existence?

I find myself guilty  of making assumptions about people and situations way too often.

And then, the reality I was so certain of gets blown out of the water. Usually, it’s me being small and covetous. Being judgmental is just me wishing the crud in my life wasn’t. It’s me thinking life isn’t fair.

Most of us put on our game face, our fake smile,  and do our best to look perky, energetic and do what needs doing regardless of how crappy we might feel or how heavy the world weighs on us that day.

A few people will see through our façade. But we manage to fool most of them and think our life is great.

You gotta figure everyone else does what you and I do. Everyone else has on a game face for the world to see. At home, the reality could be filled with tears, anger, and worry, much sadder and more desperate than we could even imagine.

That perfect little family down the street might be struggling with someone dying of cancer. The co-worker who seems to have it all together may be losing everything he’s ever worked for. The adorable Barbie-figured woman who jogs past your house every morning may be on her last gasp before running away from it all. The quiet, unassuming kid behind the counter who’s always polite to everyone, might have plans later that end it all.

Ah. You never know. Until it’s too late. Even then, you  may not know.

Poker

Poker (Photo credit: maorix)

The cards we get dealt in life are ours to play however we choose. We can let everyone see what hand we have.
We can hold ’em close to our chest and not divulge a thing. We can have a poker face that discloses nothing.We can bluff our way through and have everyone fooled. Only we know what we’re playing with.

Why I’m using a card metaphor, I’m not sure. I think it’s a big cliché’. And, I’m a lousy poker player. And, I only play for chips, for fun, for the laughter. Hopefully, I play out my life better than I play cards, or write.

I’m reminded today that I can’t guess at what anyone else has in their hands, in their hearts, behind their door. I can only wish them the best, help when I can and be kind to strangers.

What’s that quote? It’s attributed to a few different people. But whoever said it, said it well and was wise.

Be kind. For everyone you meet is fighting a hard battle.”

I, for one, am going to try to be a little less judgmental, a little kinder, a bit more gentle. I want to give others credit for thinking through their circumstances and doing the best they can with what they have.

Maybe you’re the one fighting the hard battle. If so, you can be kind to yourself. Give yourself some slack, do a little something that feeds your heart and mind and soul.

If you’re one of those fighting a hard battle today, know that you are not the only one doing so. I don’t know if that helps or hurts. I do know that I wish you strength, energy, hope, happiness, coping ability, love, recognition of small joys, and the perseverance to keep moving forward.

Crop: I try. I fail. I don't give up

(Photo credit: juliejordanscott)

Don’t give up.

It will get better.

You are not alone.

Categories: Mental Health, Wondering | Tags: , , , , , , , , , | 9 Comments

Clearing the Cache in My Brain and Wishing for Rain

I just need to say this…

You know that thing you do when your computer gets sluggish? Turn the whole thing off completely, then turn it back on. I think it’s called a hard reboot or maybe that’s clearing the cache.  Or maybe they’re the same thing or not at all related. I only know that if the computer or my smart phone behave badly, turning it off and then back on will often solve the problem.

I’m sorry If you’re a computer person and you’re cringing right now.

What I’m getting at is that humans need a process like that.

Actually, I think they do. It’s called sleep. Switch off for a few hours, ideally eight, and then restart. The human warms up and begins functioning as it should again.

sleep

sleep (Photo credit: Sean MacEntee)

The amount of sleep seems important, not just the off/on thing.

I’ve let my sleep take a hit the past couple of weeks. A little off the beginning, a little off the end most nights. And instead of eight hours, it’s more like six. Then a few five-hour nights and I get sluggishly slow in response times.

Add in a really short night’s sleep, say two or three hours, and bam. Sentences fall apart. New words get created that are gibberish. Driving isn’t recommended.

Even a nap just seems to aggravate things. I need two or three solid nights of uninterrupted slumber to get my groove back.

And another thing…

Virga, Valley, Mountains

Virga (Photo credit: sea turtle)

All day it’s looked like it wants to rain. That kind of teasing isn’t nice to do to desert dwellers. Give me sunshine, or possibly high, thin clouds, or actual rain splashing down from the sky onto the ground. But don’t do the gray sky, virga, smell of rain on the breeze thing. It raises our hopes.

Just saying.

And all this whininess is because…

Lonely Monkey Ape at Zoo

Lonely Monkey (Photo credit: epSos.de)

My cousin isn’t here anymore. And I miss her. Already. A Bunch.

Yup. It was a short visit. But we packed it full to the brim. Saturday felt like three days in one. Even today had a kind of time warp feel to it. Nice. She lifts my heart and makes life cheery and wonderful.

She’s getting on a plane any second here. So now I am feeling blue. It’s temporary. It’s that blue funk I’ve written about before. I’ll be okay.

I kind of need to wallow in it. Sorry to involve you. I’ll try to find a good joke, or story, or something fun for tomorrow.

To summarize…

  • Wish me happy dreams.
  • Pray for rain.
  • Feeling sorry for myself, but only for a little while.
Another Fun and Safety Guide

Another Fun and Safety Guide (Photo credit: Sam Howzit)

May the force be with you. Keep your hands and legs inside the ride at all times. Drive safely. Just say no to drugs. Call if you’re going to be late. Don’t do anything I wouldn’t do.  Have a nice day. And turn off the lights when you leave the room.

Categories: Mental Health, Relationships, Wondering | Tags: , , , , , , , , , | Leave a comment

Purses and Backpacks and Pockets, Oh My!

Margaret Thatcher, one of the preeminent leaders of the free world. Powerful, respected, memorable. I watched the biopic “The Iron Lady” recently and one thing struck me as outrageously odd. She carried a purse everywhere. I figured by time you reached that level of power and influence in your life that maybe, I don’t know, someone else could haul your stuff around for you. What does a world leader carry in her purse. Lipstick? Powder? Feminine hygiene products? Pictures of the kids? Smelling salts? A small caliper gun? Snacks?

Ronald Reagan and Margaret Thatcher.

Ronald Reagan and Margaret Thatcher (with purse.) (Photo credit: Wikipedia)

Eesh.

Men get by with a few pockets. Granted there are all those mysterious hidden pockets in suit jackets that I’m envious of. That probably helps, a bunch. And occasionally they carry a briefcase. Or someone carries the briefcase for them. Of course they aren’t prepared for every single possible scenario that might happen to them in a day. No needle and thread, no granola bars, no bandaids, no juice boxes or acetaminophen or crayons. No. They manage to get through a day without packing around all the contingencies.

Hmm.

About three years ago I stopped using a purse.

This was pre-smart phone for me. I carried a tiny notebook, a small pen, my driver’s license, a bank card, some cash, my keys and my flip phone.  That left one pocket empty. That pocket could hold lip balm, or some change, a tissue, or a small pack of gum or mints. Or it could stay empty.

This move left two hands free. And a mind free.  Going without a purse let me enter a room and leave a room without wondering or worrying about my purse.

Where to put it, don’t forget it, is it safe.

The only thing I wonder about now is why I hauled around a purse for so many years.

louis vuitton medium speedy with rabbits foot

louis vuitton purse (Photo credit: …love Maegan)

With little kids it’s kind of a necessity to haul half your house hanging from your shoulder.  I think that’s why I walk a little lopsided. My massage therapist (thank you Michael) says one leg is slightly shorter than the other. I never confessed to him that it was probably due to the bulldozer-sized purse I used to schlep around.

Somewhere in the diaper bag/purse phase I went back to college and adopted the ubiquitous backpack for keeping my on-the-go life going. Was that ever convenient. And heavy. Even now, when I travel, the backpack is an essential item for keeping chaos in check. But my pockets are still essential and well loved.

As the kids got older you’d think the purse would have gotten lighter.  But I adopted an organizer system that consisted of hauling a ten-pound notebook everywhere I went. It was the paper version of a smart phone. If you needed info, I had info. I was one organized wonder woman in those days. Of course, my shoulder hurt, and sometimes my neck hurt too. But I was on a schedule, my kids were locked and loaded, life was under control.

Unless I misplaced my planner/organizer. Or needed my hands free. Or it slipped off my shoulder and got in the way. I called it my brain. That’s not so good.

But it was helpful and had its time and place in my life.

The What-ifs

Here and now, all the what-ifs of a purse just don’t matter that much.

jeans watch pocket

jeans watch pocket (Photo credit: Muffet)

Three years ago pockets became all I needed. And I have stuck with it. Once the smart phone became part of the equation I was able to ditch the notebook and pen. And now the fourth pocket carries my ear buds for audio book opportunities or easy hands free phone conversations.

Wardrobe decisions come down to pockets more often than not. I really, really, really don’t want to haul a purse around anymore. Some may argue that filling your pockets ruins how your clothes look. Sure I’m not all sleek and smooth with stuff in my pockets, but then, I’m kinda lumpy and bumpy even without full pockets, so it’s no big deal.

Sure once in a while I’ll grab a bag, or purse, or a pack for something unusual. But mostly, it’s just me and my pockets.

It’s not for everybody. The style-conscious look at me like I’m certifiable, which may be true some days. The ultra-prepared can’t imagine going purse-less. Feels too out-of-control.

It’s all about the freedom and convenience for me.

Maybe it’s a trend that’ll catch on.

Or not.

Categories: Wondering | Tags: , , , , , , , | 1 Comment

I’ve Seen that Smile Somewhere Before

I’ve been told on numerous occasions that I have a familiar face. I remind people of aunts, cousins, nieces, grandmothers, sisters, former bosses or secretaries, neighbors and co-workers. That could be a problem if I were in witness protection. I probably wouldn’t last very long.

Mildred C Youngberg (1920 - )

Mildred C Youngberg (1920 – ) (Photo credit: Robert of Fairfax)

I’ve had complete strangers walk up to me in restaurants and swear that I am their relation from years back. Am I sure my name isn’t Mildred? Yes, I’m sure. And have I ever lived in Scranton? No, I have never lived there. Dang. And they walk away shaking their head.

If someone is staring at me, I know it isn’t really me they’re seeing.  They’re probably trying to figure out why Aunt Matilda would be at a rest area in Wyoming when she hates driving and lives in Miami Beach.

With little kids it’s different. They just see a friendly face. I try to remember to smile at the ones strapped in a grocery cart. It’s fun to watch them notice that I’ve noticed them. Sometimes I’ll throw in a wink and they all but giggle with delight. It’s like we have a secret, just shared eye to eye. There’s an occasional nap-deprived grouchy kid, but mostly the response is delightful.

I think the familiar face thing I have going on has helped me get a job or two. So far, I haven’t ever had anyone say I remind them of someone they didn’t like. Maybe “nice” comes with a face like mine. I don’t know.

Kathy Bates

Kathy Bates (Photo credit: matteomerletto)

I’ve occasionally run across someone who seems familiar in an eerie way and decide they remind me of what I see in the mirror.  I’m not intrigued. I’m freaked out by it. I tend to run the opposite direction. Who’d want to have a conversation with themselves? Not me. No way. They’d probably think I was off my rocker if I told them they reminded me of me. Wouldn’t you?

No one really likes being stared at. It’s disconcerting. Feels a bit like someone’s casing the joint. If you see someone who seems familiar, try not to stare too much. It might be me you’re staring at.

I need to come up with some great responses, ready to go without any thinking about it, to the next few people who think I’m their great-aunt Martha. I’m not THAT old, for one thing.

What do you say to someone when they say they remind you of someone else? Has it ever happened to you? Now if someone said, “wow, you remind me of Kathy Bates,” I’d be totally flattered and say thank you. I’m sure no one ever goes up to Kathy Bates and says “hey, you remind me of this blogger I know, Kami Tilby. Ever read her stuff?” She’d just stare back at you like you’d had one too many drinks.

Don’t get me wrong. It’s not a bothersome thing. Just weird. I suppose in the afterlife I could be one of those guardian angels that aren’t scary. Imagine the stories. “Yeah, I had this angel who looked just like Grandma show up just in the nick of time, saved my life.”

Until then, I suppose I’ll just be that familiar, friendly face in the crowd, across the restaurant, or in the car next to you at the stop light. Just smile and wave as if you know me. I’ll wave back. I’ll probably even give you a wink and a smile.

Categories: Relationships, Wondering | Tags: , , , , , , , , , | 2 Comments

Catching My Shadow

I used to try to catch my shadow doing something different from I was doing.

I’d avert my eyes, pretend interest in something the opposite direction from my shadow. But secretly I was watching at the periphery for suspect movement and unexplained behavior from my flatter self.

shadow on sidewalk

A shadow on the sidewalk (Photo credit: Wikipedia)

Surely there had to be some independent quality about my shadow. How else to explain its shorter stature at some parts of the day and its odd stretching reach at others. I was too young to understand the correlation between where the sun was in the sky and what my shadow chose to do. To me it was simply a mystery, explained by something I didn’t have the ability to understand yet.

I suppose I was only five or six at the time, although I could have been older.

I was a child that desperately wanted to believe in magic and in happily ever after. I was certain that if I only believed hard enough that I could wriggle my nose just right and a candy bar would appear. I knew if I practiced long enough, holding my arms just so, and blinking my eyes with a nod and a smile that I could travel through space instantly and be somewhere new and unusual. I even figured that if I stared into a mirror long enough I’d see my friends looking back at me.

What I’ve found over the years is that all that is true. It’s just not true in the way I thought it was.

There are explanations for what I and my shadow do, but they can’t usually be explained by magic or by the sun’s movement. There’s usually a deeper reason behind the logic of my choices and the emotions of my day. I may not understand those reasons, but the explanations are there, somewhere hidden in my psyche, my history, my fears and hopes.

Although different from my youthful variety, believing, practicing, trying, studying can all bring about change. A much slower process than I wish it were, results are still tangible and distinct.  Looking back over the shortened span of my past, the changes that have happened really are miraculous and amazing.

Who I am, who I’ve become, isn’t vastly different from the child me. I think the believer in magic is still there, beside me, like my shadow. She is part of who I am. In fact, the magic believer is my shadow.

There are days, weeks, months and years that I move forward in spite of all reality tells me is impossible. I keep moving along the path I set for myself, wishing, hoping, trying, studying, working. Somewhere in all that the magic formula will occur and the transformation will happen. I may not understand it. But I’ll keep on until I do or until I find a more logical, more hopeful, more intriguing path to take.

Yup, me and my shadow, we’ll just keep believing and see what happens next.

Abracadabra!

Categories: Joy, Wondering | Tags: , , , , | 6 Comments

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