Death

What I Miss About You

photo by Richard Croft [CC-BY-SA-2.0 (http://creativecommons.org/licenses/by-sa/2.0)], via Wikimedia Commons

photo by Richard Croft

Dear Kathy,

So apparently there’s no texting allowed in heaven or I’d have heard from you by now. Dang it.

I figured maybe, just maybe, you’d get a split second or two to do some reading, since you love to read. So I thought if I wrote out some thoughts I’d had lately, you’d get the message somehow. Call me naïve, or silly or weird, I don’t care.

Also, you’ve been on my mind more than ever, imagine that. I find myself thinking of things I need to tell you about, and then remember you aren’t close by to just drop in and have a chat with. So I’ve been kind of keeping a mental list of things to talk with you about. Maybe you won’t mind if I drop you a letter once in a while to sort of make sure I’m staying connected with you somehow.

For my first letter to you I’ve come up with a list.

It’s a list of just some of the things I’ve missed about you since you left almost a month ago:

  • How insistent you are about being on time, and others being on time, too. Like a contract, you always say.
  • Seeing your face light up when you think about, talk about or get a text or a call from your husband.
  • How you always say, “love you” when I leave, and how I know you mean it.
  • Hearing about your wild and crazy daycare adventures.
  • Being completely comfortable in my skin with I’m with you. No need to weigh my words, or be careful about what I say or do.
  • Finding you sitting in “your spot” on the third floor at the Mayo, when I wander up from parking the van. That smile I get when you see me finally come around the corner.
  • How you don’t like it when we end up wearing the same color shirt to go somewhere together.
  • Getting a text from you asking “what ya doing?” and knowing it means I get to spend time with you.
  • Talking about books and movies and kids and husbands and life and death and religion and politics.
  • How you watch the clock for Sonic Happy Hour to roll around.
  • Eating pita bread and hummus while we talk nonstop, then being too full to eat our Fatoosh salad or Kabob.
  • Picking up a conversation with no glitches or strangeness after two or three or even four weeks of not seeing each other.
  • How you aren’t afraid or hesitant to ask for what you need or for what you want.
  • Finally being over a cough or cold so I cold come hang out again.
  • Having you help me make sense of the latest weird development in my strange life and how you say it makes your life seem normal by comparison.
  • Taking photos of your blooming bushes or my wildflowers to show you, or having you point out the cactus in bloom when we drive.
  • Feeling at home in THE CHAIR in your room and talking about nothing and everything.
  • Getting fries from McDonald’s and a Frosty from Wendy’s.
  • How vigilant you are when babysitting your daughter’s stuffed animals and dolls.
  • Saying it like you see it, no sugar added.
  • Just being together whenever and wherever.
  • Feeling like one of the cool “in” people when I’m with you.
  • Knowing I have someone who totally gets me without having to lay it out in detail.

So that’s all I can think of at the moment to tell you about. Except, I’m feeling pretty lucky to have you for a friend. You’re one of a kind, in case I forgot to tell you. Oh, and I love you and miss you like you can’t believe.

I’m guessing you’re busy being all angelic and stuff. I get that. So don’t worry about trying to get in touch.

Mostly I feel like you’re right here in my heart anyway. I can hear your voice in my head, telling me to crank the tunes, open the sunroof and enjoy my Diet Coke. I’m trying to do just that, cuz you’d want me to. But, it’s not just the same without you in the passenger seat.

256px-Mail_Boxes_Bruny_Island

photo by Reinhard Dietrich

Try to stay out of trouble up there.

I miss you.

Your bestie,

Kami

Categories: Cancer, Death, Friendship, Relationships | Tags: , , , , , | 8 Comments

Good Grief and other Nonsense

My internal weather.

My internal weather.

“The only education in grief that any of us ever gets is a crash course. Until Caroline had died I had belonged to that other world, the place of innocence, and linear expectations, where I thought grief was a simple, wrenching realm of sadness and longing that gradually receded. What that definition left out was the body blow that loss inflicts, as well as the temporary madness, and a range of less straightforward emotions shocking in their intensity.” ~Gail Caldwell, Let’s Take the Long Way Home

I read this book by Gail Caldwell a while back. Before I’d met my best friend. It was an interesting read back then. I even quoted it several times in this blog post last year.

Now I’m rereading the book as a roadmap, trying to find my way out of this jungle I’m lost in.

I had no idea I’d feel this way. I thought I’d feel sad, of course, after Kathy’s Myeloma wrenched her from life. But this isn’t anything like any sadness or depression I’ve ever felt.

There’s real, tangible physical pain. No one ever told me about that. People don’t discuss grief actually, so when would I have learned this?

And I have only one channel in my head that comes in clear enough to see or hear, the Kathy Channel. Twenty-four hours a day it plays. That bluish light that a TV screen throws out haunting the recesses of my head day and night. Oh sure, I hear and see other things. I go about my day at one-quarter speed, doing dishes, moving laundry about, showing up at places I said I’d be at.

But the background buzz, hum, light, music and weather consists of Kathy. She’d find that funny and pathetic at the same time. Glad I could humor her, sorry if I’m letting her down.

I can’t find a remote to change the emotional channel I’m stuck on.  And it takes more energy than I have to look for it and figure out the buttons if I stumbled onto it.

Insert exhaustion photo here. Picture whatever fits for you, I can’t think that hard today.

I feel successful when I get dressed. When I eat. When I carry on a conversation without saying her name or referring to her somehow.

Please don’t ask me to go to the grocery store. It takes hundreds of steps to get to the dairy section, and more energy than I have to lift the gallon of milk into the cart. And then seeming miles away the produce section waits, the logic of its order lost on me. And the loudspeaker blaring, do loudspeakers do anything else but blare? Obviously the overnight restocking crew cranks the music up and no one ever turns it down. How am I supposed to think through this grocery list with so many bad songs from the eighties and nineties blasting away at my every thought? And heaven forbid I should see someone I know. I dig up my cheerful face, drag out my pretend untired voice, pull my shoulders back to give the illusion of standing up.

I attempt all the right responses.

“Fine. Great. Tough. Getting through. Life. Goes On. Thanks. Sure. Uh huh. See ya around.”

Then I cave in on myself. I want to curl up in the shopping cart and sleep, right there beside the salad dressings and croutons and bacon bits. Pull some cereal boxes over my head like a bad blanket.

But that would indicate some kind of madness or lack of sanity or a grip slipped. So instead, I stare at the grocery list and find something on it that tells me what I should do next, if I can go home yet.

All this from a mere five-year friendship.

I can’t begin to fathom a twenty-five year marriage with half of the duo gone. It’d be like a body with no skin, all raw, exposed nerves and internal parts on fire with rage, salt encrusted, oozing.

Someone should do something to fix this. This can’t be right. Aren’t there rules or laws that make this kind of pain illegal or impossible?

Categories: Cancer, Death, Mental Health, Relationships | Tags: , , , , , , , , , | 9 Comments

Adopted by Love

Like Aspen groves, Kathy's extended families provide support in unprecedented ways.

Aspen groves expand through an extensive root system in a colony that gives strength and vitality to every tree in the system.

It’s Gratituesday! Today I’m grateful for all the open arms, hugs, expressions of sympathy, shared tears, flowers, cards, notes, texts, messages and understanding I’ve received since Kathy passed away.

I know friends of the deceased often go unnoticed and unacknowledged, but that has definitely not been the case here. I’ve been cared for and comforted by both sides of her family and by my family, acquaintances, strangers and friends in wonderful and unexpected ways.

I’ve been included as if I were a member of her and her husband’s extended families. I should not have been surprised by all these kind relatives of Kathy, of course they’re just like her; warm, welcoming, kind, sensitive, funny, generous, perceptive, direct and filled to overflowing with love.

Every conversation with one of them, every hand or arm extended, every gesture of kindness toward me felt like her speaking, her arm, her hand, her kindness, her presence still in my life.

Just like Kathy always managed to do, they turned the situation around. Instead of me providing comfort and sympathy to them, they filled me with warmth, surrounded me with empathy and cradled my heart, gently lifting me and sending healing and strength my way.

How thankful I am for such kind people who have helped ease the sting of such a loss.

I wish them comfort and healing. I wish them moments of clarity and joy. I pray they find solace often in every day things. I hope they hear Kathy’s voice in their mind from time to time whispering words that only she would know to say to them.

I pray they occasionally hear her laughter in the wind and see her smile in the faces of the family around them. I hope they feel as much love from each other as I felt this weekend in their presence.

If that happens, I know they’ll be okay.

Categories: Cancer, Death, Family, Gratitude, Gratituesday | Tags: , , , , , , , , , , | Leave a comment

Missing Words and Missing People

It’s Gratituesday. Today I feel profound gratitude for the five years I enjoyed with my best friend Kathy. She passed away early on Friday.

A Lincoln rose, Kathy's favorite.

A Lincoln rose, Kathy’s favorite.

She was ready for it.  For her, death arrived with relief and peace and hope.

We had talked openly and frequently about death during her war years with cancer. Turns out that theory and talk didn’t prepare me for this reality.

I’ve never seen anyone with such a capacity for honesty and directness. Never one to beat around a bush, Kathy simply says what she thinks. And somehow, through charm or charisma, or that cutesy high-pitched teenage voice, she gets away with it. In fact, I’ve found myself emulating her straightforward ways and am all the better for it.

Spunky, gutsy, and get ‘er done doesn’t quite do her justice. If she set her mind to something you’d better get out of the way or pick up a hammer and get to work beside her. Determination resonates as her middle name.

Hand in hand with such spunk is her fearlessness which still dazzles me. My breath catches when I think of the countless number of times she faced a new chemo treatment, another experimental drug, another bone biopsy. Courage of astounding proportions resided in that heart of hers.

She wrapped her all around her children and her husband. Family first, family always. We talked more about her family than any other topics combined. She loves that bunch of people with every bit of herself. Literally and figuratively.

Her fierce capacity for love, listening, acceptance and caring radiated and warmed so many.

Whatever I come up with to express gratitude for her sounds so inadequate. The right words seem caught on the jagged edges of this crater left in my heart by her passing.

Unlike Kathy, I find myself woefully unprepared for her death.

This surprising onslaught of grief seems equally weighted against the laughter, joy and beauty she brought into my life for which I will be forever grateful.

Categories: Cancer, Death, Gratitude, Gratituesday | Tags: , , , , , , , , | 7 Comments

The Odd Ways We Say Goodbye

Everything drips with symbolism lately.

photo 2-1 copy 5

Whether shiny, sparkly or pale the gold looked stunning next to green boughs.

I’ve undecorated the tree this afternoon. It’s time to let go. In fact, it’s past time. The needles are dropping faster, brownish tan slowly outshines the evergreen color. Sure, in a certain light, night-time,with just the small twinkle lights on, it looks vibrant and adds such ambience to the room. But in reality, a fire hazard stands in the living room.

When we first became acquainted, this tree sent its voluptuous pine scent wafting about the entire house. I thought it seemed happy here. But truly, it was simply on its last few weeks of a life spent outdoors, gazing at the stars, tucked in under the snow, basking in the sun, drenched in the rain. Then it found its life cut short and quickly waning. For a brief span of time it glowed and sparkled with beauty and light and life, its last bit of energy expended giving joy and lifting hearts.

photo 1 copy 5

A well-lived life draws to a close.

But now, fully spent, its time has come to move on. Perhaps a few of her needles will become part of the mulch that nurtures next autumns flowers into a radiant bloom. Perhaps a chill night will be brightened and warmed by her last few embers. Perhaps in years to come a photo of a decorated tree, fallen over with the weight of too many ornaments and not enough balance, will lighten the heart of an aged woman. Or another photo of that same tree redecorated and standing proud and straight with a sweet smiling man at her side will bring cheer into a grandchild’s mind.

This sweet Christmas tree oversaw a bittersweet holiday.  It did its job with honor and aplomb. If there were medals awarded for Christmas tree service above and beyond the call of duty, this tree would have earned and worn an extras star of honor.

Now a small brass angel oversees the last of the boxing up of the gold and white bulbs, the untangling of the white lights from the branches. Tonight that tree will look up at the stars once again and dream.

photo 4 copy 2

A few baubles waiting to get boxed up for another year.

Tonight, my living room will feel empty. I’ll walk in and feel lost knowing something important is missing. The empty spot will continue feeling empty regardless of the rearranging of furniture or placing of photos and lamps.

Now you see that I’m a silly, melodramatic woman, with far too much time for thinking and not enough to keep my mind and hands occupied.

I keep saying goodbye in such odd ways.

Maybe this year, this new set of twelve months, will be spent doing just that.

Categories: Death, Holiday, Memory Lane, Relationships, Wondering | Tags: , , , , , , | 1 Comment

Laughing Even When it Seems Wrong or Impossible

Kathy loves to laugh. She can see humor in some of the most surprising places. I’ve even heard her chuckle a couple of times this week, in spite of the rapid changes happening to her.

She, more than anyone I know, appreciates a bit of morbid laughter and jokes about dying. Like I’ve said before, there isn’t a topic she’s afraid of. Death certainly wasn’t taboo. Joking about it made it all the more approachable. So here are a few chuckles to lift the mood in the room.

20131228-113206.jpgOn more than one occasion we’ve discussed the movie “Patch Adams” and that wonderful scene between Patch and Bill, but we could never remember all the euphemisms for death that they came up with. So, I finally looked it up.

Patch Adams for real, not the movie version.

Patch Adams for real, not the movie version.

“Death. To die. To expire. To pass on. To perish. To peg out. To push up daisies. To push up posies. To become extinct. Curtains, deceased, Demised, departed And defunct. Dead as a doornail. Dead as a herring. Dead as a mutton. Dead as nits. The last breath. Paying a debt to nature. The big sleep. God’s way of saying, “Slow down.” To check out. 
 To shuffle off this mortal coil. 
 To head for the happy hunting ground. 
: To blink for an exceptionally long period of time. 
 To find oneself without breath.  To be the incredible decaying man.  Worm buffet.  Kick the bucket.  Buy the farm. Take the cab. Cash in your chips.” – Patch Adams

Kathy likes being the center of attention. So this one in particular seems appropriate to share.

20131228-094814.jpgWe’ve taken turns over the past few years being one fish or the other. She, admittedly, was usually the glass half full fish.

20131228-113252.jpgThat thin line between humor and truth can bring out some startling and deep thinking. Calvin and Hobbes  seem wise beyond their years in this one.

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Categories: Cancer, Death, Humor | Tags: , , , , , , | 1 Comment

Flummoxed

The sun rose from the southern sky this morning. Okay, maybe it leaned a bit to the east, but not by much. I wondered if winter solstice got ignored, or the axis of the earth shifted a bit over the past few days. I wouldn’t have noticed with how sidetracked and discombobulated I’ve felt.

So yeah, apparently, we’ve bypassed winter solstice and moved into a new phase of the earth/sun cycle.

I suppose it’s possible that the sun has risen further south every day for months and I’ve only just today noticed. In fact, that’s the more likely explanation isn’t it?

Reason flew out the window, though.

Barometer Glass

Barometer Glass (Photo credit: cobalt123)

It feels to me like the other way around. A change in the cosmic mechanisms of the universe feels more likely. Cogs slipping, everything off kilter just a bit. At least in my heart and in my head that’s what’s happening. So if the sun chose to follow along, I’d completely understand.

There’s more to it than the angle of the sunlight, lower and more southern than normal. My wildflowers pushed up through the rocky soil of the front yard four weeks ago. Normally those tenacious little seedlings wait until after December and sometimes into late January to show off their leaflets.

But not this year. Nope. My front yard’s awash in a carpet of green. African Daisies cover the majority of the area, but even the California Poppies have spread out and filled in normally barren areas. Odd.

I blame it on the ridiculous three-day rainfall we experienced around Thanksgiving time. Our winter rains, traditionally a December thing, showed up early and often.

As further proof that nature’s off-balance, the trees are dropping bright orange leaves as if we live in New England in the fall. That usually happens in a much less colorful way in January, when we have a freeze, the leaves turn brown overnight and then a windstorm rips them from the branches a week or two later.  But not this year.

There’s frost covering the lawn at the park every morning as well. There’s a solid white sheet draped over the whole expanse of green, giving it an aged patina with a bite of cold. As the sun inches up, (from the south) a kind of steamy fog lifts off the surface of the grass and gives the area a Middle Earth feel. If Hobbits and Trolls and Elves start tromping about the earth’s surface around here I won’t startle one tiny bit.

We’ve even had some unseasonably warm temperatures. High seventies, flirting with eighties, in December! Kids run barefoot in the grass that hours earlier wore an icy film. How is that possible?

Because, as I’ve been trying to tell you, everything’s flummoxed.

flum·moxed 
adjective
1. bewildered or perplexed.

Confusion abounds here in the desert this year.

It all matches my internal environment, that tundra in my mind and heart. A little lost, uncertain, trying to leaf and bloom, drenched in sweat and rain, changing colors and moods in a confusing array of signals about what life is or is not going to do next.

Aneroid barometer

Aneroid barometer (Photo credit: explainthatstuff)

If the sun decides to rise from the north or even from the west tomorrow I’d just nod and say, “of course, that stands to reason.” If snow decides to fall from a desert sky and settle in among the cactus needles, I’d not wonder at such a rarity.

Honestly the most appropriate weather, to match my internal barometer, would rain down in torrents a cold, soaking waterfall of heaven’s tears to mingle with my own.

Any day now a dam will burst and earth will fill with sorrow.

At least for a while.

Categories: Cancer, Death, Nature, Outdoors | Tags: , , , , , , , , , | 2 Comments

A Bit of Perspective on Kissing and Other Stuff

It’s that time of year where half the world seems to lose all perspective.

christmas 2007

A Disco Christmas? (Photo credit: paparutzi)

Chatting with my best friend the other day about Erma Bombeck’s list of things she would have done differently in life prompted her own short list of things she would have done if she had more time.

“These are not a list of regrets,” she was quick to assure me. “I have no regrets!” She gave me that look that said she was seriously completely honest about that statement. “No regrets!”

That’s true. She has used these past few nauseated chemofied pain-managed years making sure there would be no regrets that she had control over.

But there is this short list of ‘would have if she could have’ that I wrote down as we talked, with her permission of course.

  • Kiss her husband more often for at least six seconds each time
  • Pull her kids out of school for whatever, more often
  • Travel more
  • Jump on the trampoline when the kids asked instead of “later”
  • Ride bikes with the kids more
  • Teach more life skills that come in handy like “let the dryer do the ironing” and such.
  • Read bedtime stories more regularly
  • Be more gracious and nicer to her husband
  • Attend temple more often
  • Never ever start drinking soda
  • Adopt a Chinese baby since her husband speaks Chinese and could help keep their culture
  • Yell Less
  • Exercise more consistently
Gift!

Gift! (Photo credit: allie™)

I noticed the “more” she wished for wasn’t something that could be put in a package, wrapped up and tied with a bow then slid under a Christmas Tree. The “more” wasn’t something she could send someone on an errand last-minute to take care of.

I sure hope I’m making the big things the big things and not getting it backward.

It’s so easy to let the minor things take over and get major league treatment. Meanwhile The Really Important People and events end up forgotten, rolling and banging around in the cargo area.

I’m pretty sure my list would be full of BIG regrets. Not something like this “woulda been nice if” list.

Lipstick Kiss

Maybe I ought to start doing something about my regret list now, while I have time. At least, I think I have time.

We never know, do we?

Pucker up MSH, I’m headed your way.

Categories: Cancer, Death, Family | Tags: , , , , , , , , | Leave a comment

Six to Eight, Give or Take a Little

Blink

Blink (Photo credit: ballookey)

What would you do with six to eight weeks to live?

Six weeks equal forty-two days.

Forty-two days!

That’s 1008 hours. That’s all!

Eight weeks equal fifty-six days. Which amounts to 1344 hours. Sounds like a lot put that way, sort of.

Blink.

Blink again and it’s gone.

What did you just do in the past six weeks? In the past two months? Did you do anything noteworthy? Impact someone’s life for the better? Make a change in your life that felt good? Spend time with family? Apologize? Make amends? Let go of a grudge? Let go of the past?

What plans for your future are you going to miss if you’re gone in two months? Who will you miss? Who will miss you?

Have you laughed much in the past six weeks? How about tears, how much have you cried in the past eight weeks? Did you read anything life-changing, interesting or worthwhile? Did you learn something new in the past eight weeks?

Has anything caught your breath in the past one thousand hours? Been surprised by something? Have you just sat quietly with someone and felt comfortable in the silence?

Have you thanked someone in the past two months? Have you taken some time to think about all the hard things you’ve overcome to get you to where you are now? How about thinking through the good, glorious, hilarious, fun, astounding and amazing things you’ve had in your life so far?

Could you let go of it all?

Who would you say goodbye to? How would you say goodbye?

Is there someone who’d need to hear that you love them before you left, or are you sure they know? Are you really sure?

I can hardly breathe for thinking about such things.

Maybe the six to eight weeks will really turn into twelve weeks or more. That’d be good, that’d be great!  But still, it wouldn’t be enough. Not nearly. What I want is six to eight more years, twelve more years, a thousand years.

I don’t want to have to say goodbye. I don’t want to let go of a friendship. I don’t know how to permanently let go of a best friend.

I’ve never had to do that. I don’t ever want to do it.

And yet.

Blink.

Categories: Death | Tags: , , , , , , | 2 Comments

More Words I’d Rather Not Need to Know

Hospice

Hospice (Photo credit: ellenmac11)

Hospice.

My sweet friend called to let me know she had begun hospice care. She sounded relieved, happy, almost excited.

I was baffled and confused.

To me that word meant end of life. Period. And a near immediate one at that. Period.  How could she be so positive about this?  I thought of hospice as a kind of throwing one’s hands up in the air, oh well, now we’re done fighting kind of attitude. That’s not typical of my friend. After all, less than a month ago she was a patient aggressively fighting a fiercely unrelenting disease.

I’ve had it all wrong for a long time now. I’m glad I looked into it more.

So what is it? Here’s a definition I found from a place called Hope Hospice.

“Hospice is not a place. It is a special kind of healthcare focused on keeping the patient comfortable once the patient and physician have decided that the underlying disease can no longer be treated or cured. Hospice helps the patient, their families, and other caregivers and hospice care can occur in a variety of settings. It neither hastens nor postpones death and is focused on the belief that quality of life is as important as length of life. Hospice staff members help manage pain and symptoms and provide emotional and spiritual support so patients can make the most of each day.”

Here’s another new word: Palliation. It means easing the severity of a pain or a disease without removing the cause.

That word helps me understand Wickipedia’s explanation of hospice.

Hospice care is a type and philosophy of care that focuses on the palliation of a terminally ill or seriously ill patient’s pain and symptoms, and attending to their emotional and spiritual needs. The concept of hospice has been evolving since the 11th century. Then, and for centuries thereafter, hospices were places of hospitality for the sick, wounded, or dying, as well as those for travelers and pilgrims. The modern concept of hospice includes palliative care for the incurably ill given in such institutions as hospitals or nursing homes, but also care provided to those who would rather spend their last months and days of life in their own homes.”

No more visits to a clinic or hospital sounds wonderful to someone who has spent the past five years staying in or visiting both on a daily, biweekly or weekly basis. To be cared for in one’s own home by nurses and healthcare providers relieves anxiety and frustration and improves communication. Increasing pain gets addressed quickly, logistics and questions receive almost immediate action, concern for all involved increases.

To work with professionals trained specifically for treating those with less than six months life expectancy changes the focus to comfort and communication and caring.

hospice spiralI get it now. I understand why she feels relieved and happy about being in hospice care.

She isn’t dying so much as she is living. Now that she’s isn’t battling the effects of the chemotherapy and other treatments along with the myeloma, she has an opportunity to spend better quality time with her family, make a few more wonderful memories, cherish every minute.

She’d love to take her kids to a hockey game, go to a symphony with her husband, see a few plays, spend time with extended family, eat well, laugh as much as possible, and live as long as she can. Anything anyone can do to help make any of that happen is welcome to extend a helping hand.

My hand will be held out to her as long as she needs it. And then some. I’m glad so many other hands have now joined in her care.

Categories: Death, Love | Tags: , , , , , , , , , , , , | 3 Comments

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